Data+Segmentation+for+Privacy+Reference+Materials

include component="page" wikiName="siframework" page="Data Segmentation Header" To view and download materials from previous workgroup meetings, please see the Past Meetings wiki page. =Reference Materials= predates support of HL7 CDA R2, IHE XDS.b & OASIS XSPA] || || [|Commun Understandings Paper] || Presenters: Dennis Giokas and Stanley Ratajczak Architecture approach Methods used (metadata tagging, etc.) Standards How are your standards actually used? Use Cases - Walk-through of specific examples || [|View Meeting Recording] || || (long and short versions) || with Contact Details and Reference Materials || || include component="page" wikiName="siframework" page="Data Segmentation for Privacy Initiative Contacts" include component="page" wikiName="siframework" page="space.template.inc_contentleft_end"
 * **ID** || **Reference Material** || **Date** || **Description** || **Link** ||
 * 1 || Whitepaper || 9/29/2010 || Data Segmentation in Electronic Health Information Exchange: Policy Considerations and Analysis || [|View Document] ||
 * 2 || Call for Participation || 10/06/2010 || This is the Call for Participation that announced the DSI initiative || [[file:Call For Participation.docx]] ||
 * 3 || Privacy & Security Electronic Toolkit || 10/18/2011 || caBIG Electronic Data Sharing & Security Framework - contact Alex Kanous (akanous@umich.edu)Data Sharing Resource Center Manager, University of Michigan who would be willing to talk about this resource and experience of caBIG Data Sharing & Intellectual Capital Workgroup in developing this privacy and security framework over the last eight years. || [|DSIC Link] ||
 * 4 || Subsetting sensitivity concepts in SNOMED CT || 10/19/2011 || Presentation repurposed from Nov. 2009 and discussed at DSI F2F. Reviews preliminary work done to investigate use of SNOMED CT concepts to represent sensitive clinical content. || [[file:Apelon - SCT Substance Abuse Sensitivity.pdf]] ||
 * 5 || 42 CFR2 FAQ || 11/9/2011 || SAMHSA CFR Part 2 FAQ || [|EHR FAQ] ||
 * 6 || Whitepaper || 11/21/2011 || Implementing Consumer Privacy Preferences in the HIE Using SOA [
 * 7 || Consent Options || 11/21/2011 || HIPAAT Matrix for NC Consent Options || [[file:HIPAAT Matrix for NC Consent Options - 13NOV08 - Draft.doc]] ||
 * 8 || Notes from participant || 11/21/2011 || Data Segmentation for Privacy Notes from Kel Callahan || [[file:Data Segmentation for Privacy - KC Notes - 15NOV11.docx]] ||
 * 10 || Blog Post- Policy Decision Point || 11/21/2011 || Policy Decision Point || [|Access Control Policies Link] ||
 * 11 || Privacy Web Page || 11/21/2011 || Privacy by Design || [|Privacy By Design Link] ||
 * 12 || Graphic || 11/23/2011 || Lifecycle of a Consent Policy || [[file:Lifecycle of a Consent Directive.pdf]] ||
 * 13 || Canada Infoway Call: Overview || 12/1/2011 || Canada Infoway Call with Joan Roch || [[file:ONC v2.pdf]]
 * 14 || PDF HITSC Metadata Recomendations || 12/12/2011 || HITSC Metadata Analysis || [[file:metadata-analysis-power-team-06-22-11-1.pdf]] ||
 * 15 || Canada Infoway Call: Technical Deep Dive || 1/26/2012 || This was an optional meeting in which Canada Infoway discussed the ways in which the segment data
 * 16 || Quebec's Interoperable EHR Security Architecture and Protection of Personal Information || 1/20/2012 || This document discusses approaches to privacy protective patient identity management and consent management. As I understand it, patient demographics are stored separately from PHI, and identifiers are managed so as to minimize exposure of patient identifiers and demographics used in other contexts, thereby lowering the risk of relinking. || [[file:186_DSEIQ-Arch2A-Description_and_overall_operation_of_HIAL_EN.doc]] ||
 * 17 || HL7 CDA R2, Confidentiality Code, and Act Policy Type for DS4P || 2/23/2012 || Topics discussed:* HL7 Confidentiality Codes
 * HL7 ActPolicyType Codes
 * CDA R2 Header Data Elements
 * CDA R2 support for Confidentiality Code at the header and section levels
 * How CDA entries can be associated with externally referenced privacy policies, notice of prohibition to redisclose, or consent directives
 * C32 and ToC Constraints on CDA capabilities to convey Consent Directives || [[file:DS4P - HL7 CDA R2, Confidentiality Code, and ActPrivacyPolicyType Codes.pptx]] ||
 * 18 || Direct XD* Envelop Metadata for DS4P || 2/23/2012 || Direct Project includes support for trading partners capable of exchanging and registering payloads wrapped with XD* Metadata Envelope* The XD* Metadata may be derived from the payload
 * Some Metadata may be revealing of protected payload information
 * DS4P, Query Health, and Direct Projects should avoid using Metadata that reveals what is intended to be concealed from unauthorized users, including intermediaries, while ensuring that appropriate routing and patient matching information is available on the envelope || [[file:Direct XDR-M Envelope Metadata for DS4P.pptx]] ||
 * 19 || CDA R2 Visio Diagram || 2/23/2012 || Diagram of CDA - Annotated with XD* Metadata Sources & Support for Privacy & Security Policy || [[file:CDA for DS4P.vsd]] ||
 * 20 || [[file:hssp-security/PASS Alpha - Access Control Conceptual Model Release 1.0 - Post-Ballot Reconciliation.pdf|PASS Alpha - Access Control Conceptual Model Release 1.0 - Post-Ballot Reconciliation.pdf]] || 2/29/2012 || HL7 Privacy and Access Security Services specification provides a platform independent description of system services (e.g., in an EHR) needed to provide the basic capabilities with which a patient or provider can request access to patient health information from a protected resource and, based upon the security and privacy policies applied by the resource, have that access either be granted or denied. Specifies security/privacy functional capabilities that are exposed through well-defined service interfaces. || [[file:PASS Access Control Conceptual Model Release 1.0.pdf]] ||
 * 21 || HIMMS 2012 Data Segmentation for Privacy || 3/2/2012 || This is the presentation delivered at HIMMS by Johnathan Coleman || [[file:Data Segmentation for Privacy_HIMSS2012_FINALv2.pdf]] ||
 * 22 || Review of Recommendations from the HITSC on Privacy Metadata || 4/12/2012 || This is the presentation Walter Suarez delivered at the April 2012 Face to Face Meeting || [[file:DS4P Initiative - Presentation on HITSC Recomm on Privacy Metadata.pdf]]
 * 23 || Consolidated CDA and Consent Act || 5/2/2012 || This document contains details and diagrams on Consolidated CDA including comments from a work-group member regarding how we may propose changes to CDA (balloting opens May 4th, 2012) || [[file:Consolidated CDA and Consent Act for DS4P.docx]] ||
 * 24 || Kairon Consents material || 6/1//2012 || Patient centric (open source) consent prototype. Main ideas:
 * a patient's consents are in one place, reachable by all. (No update propagation needed)
 * generalized conditions applicable to many exchanges (e.g., doctors treating me)
 * implement //everything// in one rule formalism || [] ||
 * 25 || Data modeling comments: Metadata, aggregates, and envelopes || 6/16/2012 || Arnie Rosenthal opinions that envelopes should not be a major primitive: instead, rely on a general facility for aggregates and metadata tagging || [[file:metadata+ aggregates +envelopes.rtf]][[file:metadata+ aggregates +envelopes-short.rtf]]
 * 26 || HITSC Recommendation Alignment || 6/20/2012 || Office of the National Coordinator for Health IT - Response to the HITSC PCAST Analysis and Recommendations on Patient Privacy, Provenance and Identity Metadata - S&I Framework Data Segmentation for Privacy Initiative 6/20/2012 || [[file:HITSC Recommendation Alignment-DS4P_final 2012-06-28.pdf]] ||
 * 27 || Updated: DS4P Implementation Guidance Comment Disposition Log || 8/27/2012 || Formal Comments made by workgroup members on the Data Segmentation for Privacy Implementation Guidance Document. || [[file:DS4P Comment Disposition Log - Implementation Guidance-V3_Final.xlsx]] ||
 * 28 || HL7 Privacy and Security Vocabulary || 8/28/2012 || HL7 Privacy and Security Vocabulary Table with definitions and value set OIDs; and Enumeration Diagram || [[file:HL7 Privacy and Security Vocabulary Tables.docx]] ||
 * 29 || DS4P Implementation Guidance v1.0.3 || 8/27/2012 || Updated version of the DS4P Implementation Guidance document || [[file:Data Segmentation Implementation Guidance_consensus_v1_0_4.pdf]] ||
 * 30 || SSA Presentation Slides || 10/16/2012 || Updated SSA Presentation Slides Nationwide on 06/18/2011
 * 31 || SSA NwHIN Interoperability Guide || 10/16/2012 || The SSA NwHIN Interoperability Guide describes the transaction flow along with message descriptions based on the NwHIN Exchange Technical Specifications || [[file:siframework/ssa-827.pdf|http://wiki.siframework.org/file/view/SSA_NHIN_Interoperability_Guide_V_1_1.docx]] ||
 * 32 || SSA-827 || 10/16/2012 || SSA-827 (Authorization to disclose information to the Social Security Administration) || http://wiki.siframework.org/file/view/ssa-827.pdf ||
 * 33 || DS4P Presentation to HL7 || 9/25/13 || S&I Framework Data Segmentation for Privacy Initiative Presentation to HL7 || [[file:9-25-2013_DS4P_HL7.pptx]] ||
 * 34 || HL7 HCS Overview || 9/26/13 || Healthcare Privacy and Securtity Classification System (HCS) Presentation -- HL7 Working Group Meeting || [[file:HL7 HCS Overview 2013 0925 r3.pdf]] ||
 * 35 || Consent2Share Project || 12/27/13 || Wiki space for the SAMHSA Pilot Consent2Share Project || C2S Project Page ||